For carers of people with advanced Dementia….

Here is the guide to recognising dying from Dementia and talking about end of life care for your loved one with Dementia if you have no idea where to start

This guide is for you if:

  1. You have struggled finding first hand, reputable information of what to expect in advanced Dementia or if someone is dying from Dementia

  2. You haven’t got time to go searching online for information you can actually use

  3. You don’t know where to start with having end of life conversations or are worried there is something important that you have forgotten to cover

Testimonials:

“Such a great support resource for carers and family..”

“I lost my beautiful mum a week ago… Your page gave me some amazing information and helped me prepare for what might happen at the end. Thank you.”

“Thank you for (your) simple but valuable content… the medical community offers very little help or practical advice for family caregivers…”

Common FAQ:

What does advanced Dementia look like?

Where is my mother best looked after as she is approaching end of life?

I am being asked to make complex decisions about things like tube feeding- what do I need to know to make the right decision?

If this isn’t quite what you need right now, continue scrolling for pdfs on a number of other relevant topics and links to reputable charitable websites answering frequently asked questions

Approaching complex care decisions for persons with advanced dementia and navigating a healthcare system that doesn't make sense
£10.00

Here are my top 10 tips if you care for someone with dementia and are struggling to strategise managing complex care needs and navigate the healthcare system.

Answers questions like:

When do I start making decisions about the future?

Why am I struggling to get the help I need?

What common pitfalls can I avoid?

Approaching complex care decisions for persons with advanced dementia and navigating a healthcare system that doesn't make sense
£10.00

Here are my top 10 tips if you care for someone with dementia and are struggling to strategise managing complex care needs and navigate the healthcare system.

Answers questions like:

When do I start making decisions about the future?

Why am I struggling to get the help I need?

What common pitfalls can I avoid?

What to do if the doctor won't talk to you about dying
£10.00

My top 10 Dos and Don’ts if your doctor won’t talk to you about dying

Answers questions like:

Why won’t the doctor talk to me about dying?

When do I talk to other family members about dying if the doctor doesn’t agree?

How do I open a conversation with this doctor that will get me closer to the outcome I want?

What to do if the doctor won't talk to you about dying
£10.00

My top 10 Dos and Don’ts if your doctor won’t talk to you about dying

Answers questions like:

Why won’t the doctor talk to me about dying?

When do I talk to other family members about dying if the doctor doesn’t agree?

How do I open a conversation with this doctor that will get me closer to the outcome I want?

A few organisations that produce online information on death, dying & dementia:

FAQs & Quick Links

2- What symptoms can I expect at end of life?

https://www.mariecurie.org.uk/information/symptoms

3- Are there medications to manage symptoms at end of life?

https://www.mariecurie.org.uk/information/symptoms/just-in-case-medication

5- What do I do if my loved one won’t eat and drink?

https://www.mariecurie.org.uk/information/symptoms/eating-drinking-problems

8- What do the early and late stages of Dementia look like?

https://www.dementiauk.org/information-and-support/about-dementia/stages-of-dementia/

9- Where can I find financial and legal advice relevant to end of life care planning and Dementia?

https://www.dementiauk.org/information-and-support/financial-legal/